References and Resources
Suggested by Paul Berger
Stroke survivors can use the Internet—I do!
There are many resources, products, references and tools available to help you regain your life and achieve your goals. Click here for reviews of the products and books I use everyday. Click here to learn about screen reader software and the accessibility features of our website. Here are the other association websites I visit often.
http://www.biausa.org/index.html The Brain Injury Association of America was founded in 1980 by a group of individuals who wanted to improve the quality of life for their family members who had sustained brain injuries. The Brain Injury Association of America encompasses a national network of more than 40 chartered state affiliates across the country, as well as hundreds of local chapters and support groups. By acting as a clearinghouse of community service information and resources, participating in legislative advocacy, facilitating prevention awareness, hosting educational programs and encouraging research, the Brain Injury Association of America and its affiliates work to reach the millions of individuals living with the "silent epidemic" of brain injury.
www.labtestsonline.org/ Lab Tests Online has been designed to help you, as a patient or caregiver, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases. The work of the clinical laboratory professional - who analyzes chemical indicators in the body to provide the doctor with a clearer picture of a patient's health - has long been an unseen aspect of health care. Yet, clinical lab tests often provide the link between the patient's presentation of symptoms and the doctor's diagnosis of and prescribed treatment for a particular condition or disease. Through preventative screening, lab tests also aid in the early detection of potentially fatal conditions, and in so doing, lead to early treatment. In short, lab tests can help both to save lives and to improve the quality of life.
www.thefamilycaregiver.org The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one.
www.phrma.org/about_phrma The Pharmaceutical Research and Manufacturers Association of America (PhRMA), provides information on prescription drugs, including links to assistance programs for people in financial need
www.toastmasters.org Toastmasters helps you set goals to improveyour communication and confidence by following a structured program, with constructive support from others in the club. Local Toastmasters clubs meet at different times and places, with very reasonable dues
www.abanet.org/legalservices/lris/directory/ This American Bar Association committee provides support and assistance to local public service lawyer referral programs that provide information on appropriate, quality legal services to the public. E-mail (firstname.lastname@example.org) or call (312) 988-5754 for more information.
http://www.caregiver.org/caregiver/jsp/home.jsp Family Caregiver Alliance has developed a wide array of services and publications based on caregiver needs and offers programs at local, state, and national levels. Often described as a "one-stop shopping center for caregivers," Family Caregiver Alliance programs and services.
http://www.diabetes.org/home.jsp The mission of the Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.
http://www.ataporg.org/atap/index.php The mission of ATAP is to promote the collaboration of AT Programs with persons with disabilities, providers, industry, advocates and others at the state and national level and to increase the availability and utilization of accessible information technology (IT).
http://www.bcm.edu/ilru/ Independent Living Research Utilization( ILRU) has a long history of providing research, education and consultation in the areas of independent living, the Americans with Disabilities Act, home and community based services and health issues for people with disabilities.
www.christopherreeve.org/ Look for “One Degree of Separation: Paralysis and Spinal Cord Injury in the United States.” The study was initiated by the Christopher & Dana Reeve Foundation and conducted by the University of New Mexico’s Center for Development and Disability
http://www.nationalhealthcouncil.org/ The National Health Council is the only organization of its kind that brings together all segments of the health care community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers.
http://www.realeconomicimpact.org/ The National Disability Institute is a national research and development organization with the mission to promote income preservation and asset development for persons with disabilities and to build healthy financial futures for Americans with disabilities.
http://askjan.org/ Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
http://www.caregiving.org/ The Alliance is proud to have the following national organizations as members. Alliance’s mission to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients
https://www.workforce3one.org/ Workforce3 One is an e-learning, knowledge sharing webspace that offers workforce professionals, employers, economic development, and education professionals a dynamic network featuring innovative workforce solutions.
http://www.rosalynncarter.org/ The Rosalynn Carter Institute establishes local, state and national partnerships committed to building quality long-term, home and community- based services.. Our focus includes supporting individuals and caregivers coping with chronic illness and disability across the lifespan as well as limitations due to aging.
http://www.khanacademy.org/ The Khan Academy is an organization on a mission. Our library of 3000 videos covers K-12 math, science topics such as biology, chemistry, and physics, and even reaches into the humanities with playlists on finance and history. Each video is a digestible chunk, approximately 10 minutes long, and especially purposed for viewing on the computer.
http://www.aarp.org/home-family/caregiving/ Caregiving Resource Center Information, tools and tips for caregivers: Planning & Resources, Benefits & Insurance, Legal & Money Matters, Care for Yourself, Providing Care, Senior Housing, End of Life Care, Grief & Loss.
http://www.respectabilityusa.org RespectAbilityUSA is a new national, non-profit, non-partisan organization whose mission is to 1. Reshape the attitudes of American society so that people with disabilities can more fully participate in and contribute to society, and 2. Empower people with disabilities to achieve as much of the American dream as their abilities and efforts permit.
http://www.whatcanyoudocampaign.org/index.php The Campaign for Disability Employment is a collaborative effort among several disability and business organizations that seek to promote positive employment outcomes for people with disabilities by encouraging employers and others to recognize the value and talent they bring to the workplace as well as the dividend to be realized by fully including people with disabilities at work.
http://www.ussaac.org/ U.S. Society for Augmentative and Alternative Communication (AAC) includes all forms of communication (other than oral speech) that are used to express thoughts, needs, wants, and ideas. People with severe speech or language problems use various AAC methods to supplement existing speech or replace speech that is not functional.
http://www.mayoclinic.org/To inspire hope and contribute to health and well-being by providing the best care to every patient through integrated clinical practice, education and research.
http://ncdj.org/ The goal of the NCDJ is to provide support and guidance for journalists as they cover people with disabilities. Reporters who cover disability issues may find the center a useful resource for information and the exchange of ideas
https://www.brainfacts.org/ That sense of wonder drives BrainFacts.org. We are a public information initiative – global nonprofit organizations dedicated to advancing brain research. BrainFacts.org shares the stories of scientific discovery and the knowledge they reveal.
http://www.nationalacademies.org The National Academies of Sciences, Engineering, and Medicine provide expert advice on some of the most pressing challenges facing the nation and the world. Their work helps shape sound policies and advance the pursuit of science, engineering, and medicine..
https://www.americanbraincoalition.org/ The American Brain Coalition, a non-profit organization, seeks to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.